• Hope At It’s Smallest

    My pain has been harder and harder to function with lately. As a woman who lives with chronic illness and pain, I try to not spend much time thinking about how my illness will evolve over time, it doesn’t help me in the moment… and the handful of moments I do spend imagining the future has more to do with practicality, and making smart choices in the present. My bad pain days tend to roll into one another. I have various therapies that have been really helpful, but circumstances aren’t ideal at the moment. Resources are low. “At the moment” is generous, it’s a hope-door that I like to leave…

  • Sing a little louder

    I was in church this morning and a song was heavy on my heart. It wasn’t a song sung on the stage, it was whispered in my ear by the Holy Spirit. More on that in a moment. It’s been a while since I’ve posted my thoughts on my blog, rather than my Facebook page. Some of that is due to simplicity, some of that is because my Epilepsy + EDS were overwhelming to manage. It’s always a delicate balance, how do you put that into words without sounding absolutely fragile in the process? Honestly, you don’t. And I am fragile… but I don’t need bubble wrap, I need strength.…