I was in church this morning and a song was heavy on my heart. It wasn’t a song sung on the stage, it was whispered in my ear by the Holy Spirit. More on that in a moment. It’s been a while since I’ve posted my thoughts on my blog, rather than my Facebook page. Some of that is due to simplicity, some of that is because my Epilepsy + EDS were overwhelming to manage. It’s always a delicate balance, how do you put that into words without sounding absolutely fragile in the process? Honestly, you don’t. And I am fragile… but I don’t need bubble wrap, I need strength.…
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Messy middle and public school
I’ve felt a lot of “middle” this week. For those who don’t know, or are just tuning in, I am the lucky momma to a neurodivergent little girl named G. What this means for me is that most of our parenting is actually just like your parenting… we don’t know what we’re doing, but we’re willing to figure it out! (If you haven’t realized already, parenting is basically ‘Whose Line Is It Anyway: where everything’s made up and the points don’t matter’.) We enrolled G in public school while we explore what’s going on with my health, and we have been fortunate to have good experiences with her school staff…
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Skyscraper: To those with a few broken windows…
A few years ago when I heard the song Sky Scraper (Demi Lovato) for the first time, I immediately saved it to a playlist of songs that make me feel powerful. This song isn’t an upbeat typical exercise song, but I’ve found that it’s very special. Whether you are in the midst of a difficult relapse, a flare, a deep depression, etc… it’s for you. The song opens with “Skies are crying, I am watching. Catching tear drops in my hands. Only silence has it’s endings, like we never had a chance. Do you have to make me feel like there’s nothing left of me?” In my darkest hours, my…
