• Skyscraper: To those with a few broken windows…

    A few years ago when I heard the song Sky Scraper (Demi Lovato) for the first time, I immediately saved it to a playlist of songs that make me feel powerful. This song isn’t an upbeat typical exercise song, but I’ve found that it’s very special. Whether you are in the midst of a difficult relapse, a flare, a deep depression, etc… it’s for you. The song opens with “Skies are crying, I am watching. Catching tear drops in my hands. Only silence has it’s endings, like we never had a chance. Do you have to make me feel like there’s nothing left of me?” In my darkest hours, my…

  • It’s time to change the dialogue around chronic illness

    I see you. You’re struggling, you put on a brave face, you are as active as your body will let you be. You don’t say much about your condition on platforms like social media, because everyone knows just enough about medicine to be dangerous (or at the very least, naively condescending.) “Have you tried___” “My aunt has ____, and she is fine.” “I bet if you just ____” “I’ve heard some people just have to eat XYZ.” “I can’t imagine, I could never give up ____” “You should look into ____, that sounds scary.” “Buck up, don’t dwell on the negative.” “Do you even want to be well?” “Psychosomatic.” Sound…